Posting this again to announce that 11:11 A.M. just donated $500.00 to Zach’s fund to support the Children’s Cancer Research Fund.
If you haven’t already, watch the video and consider donating too!
Zach Sobiech, at the age of 14, found out he had a rare form of terminal cancer. So he became a rock star, and millions of people got to see his music before he passed away on May 20, 2013. This is his beautiful story.
From Adam, our curator: You never know what to expect until you lose someone dear to your heart this way. I lost my dad to pancreatic cancer far too early. If you wouldn’t mind sharing this so more people hear Zach’s story, I’d love it. His family has requested that anyone who is interested in helping change the fate for future children like Zach donate to the research fund set up on his behalf.
Please take just 22 minutes out of your day to watch this truly incredible and inspirational story.
I thought I would give an update on 11:11 A.M. since we haven’t had a lot of projects going on.
At the moment, everyone who volunteers their time for 11:11 A.M. (Kathleen, Angie, Mao, Leah, Melly, Marissa, and myself) are currently either in school or working full time. We do seek out organizations to donate to and keep active with that.
Sadly though, we won’t be doing another Warped Tour. I never thought I’d say that :( We will stay active in the community and keep raising money & awareness. This cause is something we all believe in and won’t stop our efforts. We will be updating this blog more often though thanks to Marissa’s involvement! We have some signed items by bands that we will work on giving away, so keep an eye out for that.
Thank you to everyone for your continuing support. It’s been a long journey and can’t believe what this organization has experienced in the past. And it couldn’t have happened without our supporters.
Adam and the 11:11 A.M. team
Everyone needs to check out our friends at the Matt Cwiertny Foundation. They have a new project up that involves music therapy and donating pre-loaded iPod nanos to patients. The music is donated by artists.
11:11 A.M. donated $300.00 yesterday to this project and love everything about it. If everyone who follows us donated $1 each, we would raise thousands. Think about it :)
Adam and the 11:11 A.M. team
Zach talks Batman with Christian Bale (by zachjakegrey)
Christian Bale calls Zach Guillot, an 8 year old boy battling leukemia who’s a huge Batman fan & they have the most darling conversation about rainy weather, Halloween costumes & most important, how awesome Batman is. Bale tells Zach, “Lots of different people have played him just like you and me. Everyone can share being Batman” & Zach tells Christian about how his brother likes Robin & his best friend dressed up like Catwoman for Halloween & accompanied Zach dressed as Batman in a homemade Batmobile & my grinchy heart grew three sizes!
Christian also told Zach that he would tell the director of the movies, the lady who plays Catwoman & the man who plays Bane about him so yes, my fangirly heart also grew three sizes today.
It’s so very beautiful. Go watch it & visit ZachAttacksLeukemia to learn more about Zach.
This makes us happy.
Team #DearJack/11:11 A.M. at Light the Night. @kathleenpae and I are walking in memory of Matt Cwiertny and Kerry Kelemen. Both 11:11 A.M. supporters. (Taken with Instagram)
We had a great walk!
Just wanted to check in and let everyone know we just donated $500 to the Washington, DC Dear Jack Light the Night Team! Since, Kathleen and I live in the area, we will be walking at the event! Anyone else going to the DC or future Light the Nights?
Over the last few months I’ve felt like the life was slowly being sucked out of me. Mostly due to problems/a lack of movement in my personal and professional lives. Tomorrow, however, I will literally have the life sucked out of me, and I somehow feel alive once more; like myself again.
Tomorrow I am participating in something called “peripheral stem cell apheresis”, the modern and less invasive method of bone marrow donation- effectively (if all goes well) saving a leukemia patient’s life. I don’t know who the patient is, where they are in the world, or anything about them.
Say what you will- so far I’ve received praise along the lines of “brave”, “selfless”, “generous”, etc. But only one word comes to mind: Necessary.
It’s not that I don’t see the big deal; I get it. And perhaps I’m underestimating other people’s fear of doctors and hospitals, maybe I don’t understand that some people are terrified of needles the same way that I’m afraid of heights. But when I got a call a few months ago informing me that I was a match, that I had the opportunity to save a complete strangers life for absolutely nothing in return (not to mention at my physical expense) I didn’t even hesitate to say yes.
I first became involved in cancer awareness over 7 years ago now, when the frontman of my favorite band was diagnosed with leukemia. He too, received a stem cell transplant, made a full recovery and continued to create the art I was, and still am most passionate about- music. After attending countless Jack’s Mannequin shows throughout my high school years, and a few chance happenings I eventually was lucky enough to get to know said frontman - Andrew McMahon - and later ended up with the opportunity (thanks to him and my dear friend Adam) to travel aboard the Vans Warped Tour representing Andrew’s organization, Dear Jack Foundation. An experience that was, in as few words as possible: life-changing. How crazy it is that one person’s illness and misadventure could have a direct effect on the rest of my life? Of several lives, or maybe even hundreds or thousands of lives?
About a month ago I had to have a physical exam to ascertain that I was fit to donate. The nurse conducting my health history asked me how I got involved with the national bone marrow registry. The truth is, I randomly walked through a swabbing event when I was a sophomore in college. Completely unrelated to the story above. I later explained my profession to the nurse, that I work for a music publication. “Oh, interesting that you say that,” she said. “I’ve had several- I can count on two hands how many donors have come through who said they got involved because the singer of a band had leukemia- you probably know who he is.”
Of course I do.
The universe works in mysterious ways and I know I say that all the time but the circumstances surrounding this situation are seriously unique, and a reminder of something I often forget myself- we are all connected, and every one of our actions - intentional or not - affects another.
Talia is a thirteen-year-old aspiring makeup artists battling with two aggressive forms of cancer. Her makeup tutorials have been viewed over 14 million times on YouTube.